Well, we finally saw the Infectious Disease doctor. Which just sounds scary doesn’t it? INFECTIOUS is not a nice word. DISEASE is equally not a nice word. I’d hate to be that kind of doctor I think.
She did not have the best news.
In short, and in exhausted stupid mom terms b/c most of the things she said made little to NO sense to me…
90% of kidney infections are caused by Ecoli bacteria but Parker has another one. One I can’t pronounce much less spell. And this type of bacteria is incredibly hard to treat. And comes back easily. Especially, possibly, when you have an extra ureter.
So tomorrow they are putting in a PICC line and she will be on IV antibiotics for 2-3 weeks at home. Which I will have to learn how to administer. On top of the five meds a day we do for her asthma she’ll have these meds six times a day.
The doctor asked if I work and when I said “kind of” (because I knew she meant full-time out of the home) she said it’s good you’ll be home b/c they only like to train one person meaning my time away from Parker in the next few weeks will be very limited. Which means working will be difficult. Which is awesome since this is our busy season.
I just feel defeated. This doc might want her fever free for 48 hours which could mean we might not get out of here until Sunday. And that is defeating. The fact that they just drew MORE blood for MORE labs and she’s been crying for 30 minutes straight. That is defeating. And loud. The fact that they have to draw MORE blood and take MORE labs in 15 minutes to test this new antibiotic combo is MASSIVELY defeating.
And I just want to cry.
But I won’t because I might just not stop.
And really, overall, on the Parker front it’s been a good day. She’s painted and colored and eaten a little. Bailey came to visit and then we got to see Grandma, PawPaw, Kelsey and Grayson when they came to pick up Bails. But then we got THE NEWS and although she’s still making good progress it feels like MY world has been upended. Because this doesn’t stop when we get home.
And I want it to just all be over.
Specific prayer requests…
1. That Parker will just STOP CRYING
2. That I can hold it together for a few more days+weeks without losing my mind
3. That Imo’s will come again today to keep the caffeine flowing through my veins so I can pretend like I’m happy
4. That Gray and Bails will have a good night home with Daddy tonight and I’ll survive the night alone.
Thanks again. For everything.